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armedwithjello
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Name: Ali Country: Canada State: Ontario Metro: Kitchener Gender: Female
Interests: Scouting, volunteer work, women's rights activism, Humane Society, sleep disorders, gay rights, my web sites, travelling, movies, dancing to a different beat! Expertise: Silliness, cartoons, crazy costumes, loud music, budget travel, daily adventures, volunteerism, hairdressing, abstract thought, open-mindedness, standing up for my beliefs, internet life, making friends out of strangers.
Message: message me Website: visit my website
Member Since:
10/4/2002
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| I was rearranging things in the china cabinets when I found a piece of torn paper, inexplicably tucked into my dad's passport from the early 1970s. It was part of a note my mother wrote to my grade 3 teacher. Thought it was interesting. March 26, 1987. Dear Mrs. Webster: I'm sorry I didn't send Alison this afternoon, and I forgot to phone in. She could barely stay awake to eat her lunch, so she had a short nap, and I took her to a NEW Doctor. My other Doctor has continued to say 'She's just fine, nothing wrong with her'. I recall sleeping at my desk a lot that year, and at times Mrs. Webster even allowed me to lie on the floor to take naps. Yeah doc, there's NOTHING wrong with me. Stupid asses! Why was I rearranging my china cabinets? Well, Mom called me on Friday, and I thought it might be to wish me happy birthday since, you know, it was my birthday. In fact, she had no recollection of my birthday until I reminded her half an hour later, but fortunately I took it in stride and just wrote it off to Mom's standard state of self-obsession. She wished me happy birthday and asked what I was doing to celebrate. She was calling to tell me she had signed up to move into the assisted living residence on January 1, and was trying to convince me that either Gilly or I should take her massive dinig room set. Neither of us wants it, we both prefer the teak table with the leaves so we can make it whatever size we want, and we love the antique china cabinet that my mother was given by a very close family friend many years ago. Why we'd want to replace it with an 8-foot solid plywood dining table with fake wood laminate on it is beyond me. She also seemed to think maybe the next owner of her condo might want it "since it matches the kitchen", but I said it's far too large for the space and she should sell it. She keeps talking about having an auction, which is absurd. The table, 8 chairs, and a massive china cabinet to match were only $2200 brand new, so an auction isn't really a reasonable idea. I'm going to try to convince her to just put an ad in the paper, or let me put them on Kijiji once she has the place cleaned out. She told me she had called a realtor to visit the next day, and I said she should hold onto the condo for a month after her move to allow time to empty it and have people in to deep-clean the carpets and sterilise the bathroom and so on. I told her she'd get an awful lot more money for it if she didn't show it until it was empty and clean. She just kind of blew off the idea. Mom called Gilly the next day. She said the realtor had agreed with me, that she should show the place after emptying it out. Mom's solution was to move up her moving date to December 1! WTF?! Somehow, in my mother's mind, the solution to completing a large and difficult task is to cram it into as short a time as possible, and during the busiest month of the year. I'm trying to reach her today to suggest that she wait until January 1, so as not to traumatise the cats by moving them to a new home and then leaving them alone in a strange place for two days while she visits us for Christmas. So I think I'm going to have to take a few days off work as soon as possible to supervise some of the packing, so I can rescue the things Gilly and I want. Mom says we don't need to take any time off work, she's got it all under control, but after the fiasco of 2007 where she hired questionable people who broke and stole her things and she told others to throw out everything in the basement, I am afraid of what will be lost. There is a HUGE potential for loss this time, since she is moving from a condo with a storage room and a storage locker to a single large room in a home, with no storage space provided. The only thing she cares about is her Royal Albert china, which Gilly and I do want but are not really concerned about since we know she won't toss them out. Knowing her, she is liable to break something while packing it though. Mom has offered us her furniture and her 53" projection TV. As much as we'd like to have it, we have NO IDEA where to keep it. I'm wondering if maybe we could accept it and keep it on "extended loan" to our building by allowing general use in the games room, until one of us moves somewhere big enough to take it. I would kind of like Mom's couch, but I also REALLY like the couch we have. I know Al wanted a new couch, so maybe he'll take one of them for now. I don't know. So I'm recovering from a weekend of too much drinking and not enough sleeping, and trying to stave off a state of total panic over my mother's insanity. Imust say I had a fabulous birthday thugh. Friday night a LOT of friends joined me at McMullan's pub in Waterloo for some awesome pizza and good times. We left around 11PM and went to Symposium so we could actually converse, as the pub had gotten so full we couldn't hear each other any more. I got to bed at 2:45AM. I was up at 7:30AM Saturday to go in the Santa Claus Parade. We walked behind the Scout float with the other Rovers, then went to Scout House to have a meet and greet with another Rover Crew. We got back at 4PM, showered and napped, and then got dressed up and grabbed D and Natalie for a night out at a strip club in London. We had a FABULOUS time, with each of us getting dragged up on stage by strippers. It was screamingly funny to watch proper Gilly and terribly shy Natalie on stage with oily men climbing over them, having them put their hands on the guys' crotches, and simulating various sexual acts. The best part, however, was seeing the grin on D's face when her favourite performer pulled her up and stuck his crotch in her face. She was totally enthralled by him, and she kept trying to cover her smile afterward when I'd catch her staring at him. She'd say "shut up" and try not to laugh, and I would poke her. At one point she wondered aloud if she'd be good at stripping, so I reached into my purse, then stuffed something into her pants. She grinned, then reached in to pull it out. It was 10 cents in Canadian Tire money. I later stuffed an actual dime in her pants, and said it was an IOU for later! It was all good fun. D won a door prize of a Sex And The City perfume set, and was thrilled. We left around 12:30AM and went to McDonald's before heading home. There was lots of raunchy conversation on the way back, and I even managed to participate between microsleeps. I think it was 3:30AM when we got back, and I was so tired I went to bed with my makeup on. I did make sure I put the Maalox on the headboard before I went to bed. I woke at 11AM, and despite the 17 (!) drinks I had last night, I don't feel hung over. Oddly I didn't feel terribly drunk last night either, although I did make sure I had lots to drink at McDonald's so I wouldn't be totally dehydrated this morning. I am a little dry, so I should have some soup and tea or something to prevent a headache later in the day. Ali out! | | |
| Well, I spent 8 days off my meds and then started back on them, and so far, so good. I'm still kind of dopey at times, but then that's narcolepsy for you. I am starting to settle into my new routine, although it's weird. I'm pretty much sleeping from 2PM or 3PM until around 6PM, then up all evening, and sleeping again about 2AM to 8AM. That's still 11-12 hours of sleep per day, but at least I can make it work so I can work in the morning and go out in the evenings. My gym schedule is suffering but I'll sort that out as I go.
The job itself is awesome. I'm still taking baby steps as far as I'm concerned, but Jamie and Scott say I've hit the ground running. I'm still not 100% on the support part of things, but there aren't many calls coming to me yet. To make use of my time, Jamie sends me things to brainstorm and to write up for the web site. Every time I respond to her with all the ideas in my head she raves about how fantastic I am. My trial period ends this Friday, and we are 100% going ahead with my official employment starting next week. Hooray!!!
On my first day of work, I quickly discovered that my 15" LCD monitor is simply not big enough to see everything properly when I'm remotely accessing a client's computer. I'm trying to find a program that will pay for a new 22" monitor for me, although I'm running into the typical buck-passing roadblocks that come with government programs. I am also looking for funding for a proper office chair, although if it comes down to it I can buy that myself, or the company might do it for me.
So things are going well, communication is good, and I'm feeling very friendly with Jamie, as I work with her the most. We have success!
This past weekend was very busy, and very enjoyable. On Friday night Gilly and I went to Mitun's bachelorette party, which involved 6 girls drinking bubbly and taking a chair dancing lesson. We had a blast, and Mitun was an awesome dancer. I have seen a few photos, and am still waiting on the video! After the class, three of us went to the Rum Runner pub and met up with a whole whack of people for a few hours of crazy (largely dirty) conversation and playing with a 4-month-old baby that someone had brought along. Somebody handed the baby to Gilly, who was moderately drunk, and it was pretty funny. She was entertaining us and the baby by making a stuffed beanie zebra perform our chair dancing routine on the table top. Also, the question of the night was, "Have you ever been licked within an inch of your life?"
Saturday morning, we met with a bunch of the pub people from Friday night and had breakfast at a nearby diner. The wedding began at noon, but I was a few minutes late as I was waiting for Cam to come in on the bus from Toronto. He was so late due to traffic snarls, I gave him directions to walk to the wedding and meet me there. I managed to get quite a good photo of the ceremony from close-up as I passed an open door at the side of the room where the wedding took place. Then I sat near the back of the room with Gilly and Al and watched the rest of the ceremony.
Oh my, was it ever beautiful. A red and gold canopy hung overhead. Mitun wore a red and gold sari with a white headdress which had Ganesh on it. Her hands and feet were covered in mehndi. On Friday night Mitun told us that she had Luc's name hidden in the mehndi on her hand, and tradition says that if the groom can't find his name on the wedding night, he must give the bride present. I couldn't see Luc's name even when she pointed to it, so I'm certain he was unable to pick it out himself!
I saw photos afterward, and saw the fantastic palanquin in which Mitun was carried down the aisle to the canopy. It was white with white flower strands hanging down from the sides. Mitun's brother and other male relatives carried her down the aisle. Her parents gave her away to Luc by placing her right hand in his right hand and declaring their blessing. The ceremony continued with 13 steps, including walking 7 times around a small fire. Luc had gone to Oktoberfest the night before as his bachelor party, and although he had gotten very, very drunk he had woken with no hangover. He said he got a bit dizzy and woozy while circling the fire, but managed not to let on.
The Hindu ceremony was followed by a brief Catholic ceremony, after which the couple and family promptly retreated for photos outside. It was a beautiful day, so I'm sure they got some lovely shots. I have seen a couple of them already, and am dying to see the rest!
We had 3 hours to kill between the wedding and the reception, so Gilly, Al, Cam, and I returned to my place to relax. Al went straight to bed, as he is really, really sick with mono. Last week he was diagnosed with both strep and mono at the same time, and he managed to finish his antibiotics before the wedding. Still, his glands are so swollen you can see them sticking out of his neck. He has difficulty speaking and swallowing. I keep calling him Typhoid Mary because he refuses to take the necessary time off work to get better. He complains he's used up all his sick days and "can't afford" to take time off, but he's catastrophising (as he does) and claiming he's going to lose everything. Seriously, the guy has a big pile of money saved up for a down-payment on a house, and if he takes a couple of weeks off to get better he's not going to be financially ruined. But anyway...
We went to the reception at 6PM, and when Cam and I walked in I met all four parents for the first time in the receiving line. luc's mother asked how I knew the couple, and I happily introduced myself as the matchmaker. All four of them got noisy and were very happy, thanking me for putting them together. Luc's dad said he'd send me the wedding bill. LOL! I hugged both Mitun and Luc, and told them how happy I was that they turned out to be so good together.
The reception was awesome. Speeches were kept relatively short, but they were very touching. Mitun's uncle made a lovely speech about Mitun's non-traditional ways, and how happy the family was when she said she wanted to have a traditional Hindu ceremony. He also talked about the wonderful melding of cultures that had happened that day, and how people from such different backgrounds celebrating together was representative of what is great about our country. Luc's dad expressed how happy they were to have such a beautiful new daughter, and how proud he was to see his son marry her. The funniest speech of the night came from the best man, who said that while the man wear the pants in a relationship, the woman holds the zipper. Touché!
Dancing was begun with the couple, the parents, and the wedding party as usual, and then everyone was invited to dance. The music mainly consisted of Indian dance music mixed with American dance and pop music. It was just amazing! I got to use my bellydance moves a lot that night, and danced so hard I found myself torn between dancing and drinking water so I didn't collapse from dehydration. The dancing ended at midnight, after which we hugged everybody good night and headed home. I think that was the best weeding I've ever been to! It's particularly special because I know Luc and Mitun won't take each other for granted, since they spent so much of their lives without dating and wishing to find someone very special to be with. Thinking about them makes me feel all fluffy inside! <3
Anyway, busy week ahead, so I'd better sign off for now.
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| Today is Day 1 of my "medication holiday". That is a term commonly used among narcoleptics, used to describe a few days of not taking stimulants in order to reduce you tolerance. I have not taken a medication holiday on over a year, although I've needed one for quite some time. The last couple of months, I've found my meds to be less and less effective at keeping me awake. Now i'm biting the bullet and doing it, since I have two weeks until I start my new job and I need my drugs to work!
I don't remember being anything but sleepy last time I did this. Today, however, I am giddy beyond control. Everything is funny, even things that aren't really funny. Al came over half an hour ago, and Gilly said, "I warn you, Ali's off her meds on purpose, and she's a total retard right now." I burst out laughing. While at times Gilly's been a bit annoyed with me, she has also gotten caught up in my silliness and we have had some good fun today.
Funny things:
The song "That Smell" by Lynyrd Skynyrd Freecycle OFFER: Petcetera Small Love Harness for Dogs up to 7 kg Blackberry Solitaire Gilly being redundant Hot dogs Waffles being a "Wookie bear" Al having eight balls on his boxers
I was supposed to go to Concordia Club for dinner with a Meetup group tonight, but I decided I'm too weird to go. I'm in a fog, eyes won't fully focus and I'm easily confused. Woke up this morning at 9AM, had tea, went back to bed at 10:15AM. Slept until 3PM. Had a breakfast of cheese dogs and soup. Sent D a crazy hot-dog-related text message. Did a few dishes. Got silly and sat down again. Lasagna pending.
I'm hoping 4 or 5 days of this will be enough to reset me. I'm sure the giddiness will wear off at some point
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| Got an e-mail this morning saying my start date will be October 1. Huzzah!
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| I believe I've neglected to mention that I will soon be employed.. Huzzah! I'll be working from home doing remote access tech support for a company here in town. This is an established company, owned by a married couple. However, this job is the result of a project they have thought up.
They decided they wanted to try to create jobs for people with disabilities who are otherwise unemployable. They intend to have people work from home and accommodate their limitations in order to provide meaningful, well-paid work. This is perfect for me, as I have quite a lot of experience and technical knowledge, and love to tinker with computers and learn new things. When I get really stuck, I call Luc and pick his brain, and he says he enjoys trying to fix my problems because I only take interesting things to him. He teaches me a lot without even trying! Because of this, I used him as a reference, and I gather he gave a glowing report of my and my abilities. Thanks Luc!
So I'm the first to be hired out of five expected hires.I've been told that although they're searching for others, I'm the only one who has applied that appears to have the technical ability to do the job. Another man, a quadriplegic, has been hired to demonstrate the process in order to sell the idea to clients. I hear he's really cool, and I look forward to meeting him.
The employers seem awesome. I've spoken with them on the phone many times, and finally met them last week. They're straightforward people who value communication and the ability to learn without formal schooling. They were interested enough in helping me that they checked out my sleep site and read a bit about narcolepsy. They also asked if I needed special equipment (I don't) and what else I would need. I said I could work about 20 hours a week, and would like to stick to weekdays and on a fairly regular schedule. They were totally on board with that plan. What a rare find!
In addition to that, they offered me some home learning materials, which I can study at my own pace and then take tests for certain kinds of certifications. That's very much of interest to me, because training sounds good but I'm always concerned about the idea of paying for courses I might just sleep through. If I can study the materials and then just pay for the tests, I think I could do really well. I do need to start out with swotting upon some things that I didn't quite pass on the trial with the boss, but it's nothing I won't pick up quickly with some notes and repetition. Once I'm doing it regularly, I won't have a problem recalling what I need to know.
So my anxiety about starting this particular job is minimal. We have mutually decided to do a trial period where Scott (one of the owners) will be on the calls with me to make sure I know what I'm doing. This will also allow me to get a feel for my suitability for the job and my comfort level in dealing with clients. Even once the trial period is over, Scott will always be available if I get stuck on something. I have also requested keeping the lines of communication open so that we can problem-solve any shortcomings I may have or difficulties I might have with the owners so we can just say things honestly and constructively. I like to know exactly where I stand and what's expected of me, so I can strive to reach and exceed those expectations. I suspect we'll all work very well together, and I'm excited about the whole thing. I don't yet know when I'm going to start work, as there are still things Jamie and Scott need to figure out. However, they're keeping me informed of their process and I'm totally confident that the job will come through.
I figure the very worst possible outcome from this is I try it out, it doesn't work out, and we can say we gave it an honest try and part with no hard feelings. I won't lose my disability pensions from trying it out. At the absolute best, I stand to improve my finances, get some training, and work in a flexible job that could even potentially turn into a career. There is nothing here to lose, and infinite possibilities for gain in so many aspects of my life. It's also good for the self-esteem, because of course the first thing people ask when they meet me is "What do you do?" I have two standard responses:
"I don't!"
"I'm a professional volunteer."
People aren't sure what to say when I tell them I have a disability, although with a brief explanation they seem to relax. Still it would be very nice to be able to say I have a REAL job that doesn't involve a drive-through window or a hairnet. I could actually feel like an adult for a change! Yes, I'm 30, but there are still so many rites of passage I've missed out on. I've come a long way in the past year, and it's only getting better! (knock wood)
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